Communicatively Constructing the Bright and Dark Sides of Hope: Family Caregivers’ Experiences during End of Life Cancer Care

نویسندگان

  • Jody Koenig Kellas
  • Katherine M. Castle
  • Alexis Johnson
  • Marlene Z. Cohen
چکیده

(1) Background: The communication of hope is complicated, particularly for family caregivers in the context of cancer who struggle to maintain hope for themselves and their loved ones in the face of terminality. In order to understand these complexities, the current study examines the bright and dark sides of how hope is communicated across the cancer journey from the vantage point of bereaved family caregivers; (2) Methods: We analyzed interviews with bereaved family caregivers using qualitative thematic and case oriented strategies to identify patterns in the positive and negative lived experiences when communicating about hope at the end of life; (3) Results: Two overarching patterns of hope emerged. Those who experienced hope as particularized (focused on cure) cited communication about false hope, performing (faking it), and avoidance. Those who transitioned from particularized to generalized hope (hope for a good death) reported acceptance, the communication of hope as social support, prioritizing family, and balancing hope and honesty; (4) Conclusion: Family caregivers face myriad complexities in managing the bright and dark sides of hope. Interventions should encourage concurrent oncological and palliative care, increased perspective-taking among family members, and encourage the transition from particularized to generalized hope.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

CORRELATION OF BURDEN OF CARE AND SPIRITUAL HEALTH IN FAMILY CAREGIVERs OF CANCER PATIENTS

Background & Aim: Families of patients with cancer during the course of their care of patients suffer from various economic, physical, social, psychological and spiritual challenges that cause their burden of care. Understanding the correlation between care and hope in these families can be effective in establishing a support system to reduce this burden. The aim of this study was to explore th...

متن کامل

The Lived experience of primary caregivers of childhood cancer in the end of life: A qualitative study

Background Cancer is one of the leading causes of childhood death worldwide. Cancers under the age of 18 have been epidemiologically called pediatric cancers (1). Childhood cancer is one of the most common and yet deadly diseases among children. Among childhood cancers, leukemia and central nervous system tumours are the most common and have a larger population of patients and caregivers in th...

متن کامل

کیفیت زندگی و ارتباط آن با امید در بستگان مراقبت کننده از بیماران اسکیزوفرنیک

  Families of patients with Schizophrenia endure remarkable hardship for coping with their patient's psychotic symptoms and they confront several physical and emotional stresses. Regarding the importance of family's role in supporting patients in community-based services, the present study was conducted to determine correlates of quality of life in the family caregivers of schizophrenic patient...

متن کامل

Lived Experiences of the Caregivers of Infants about Family-Centered Care in the Neonatal Intensive Care Unit: A Phenomenological Study

Background: Family-centered care (FCC) has recently been recognized as the most effective approach in pediatric and family care. Despite the emphasis of healthcare systems on commitment to the philosophy and application of FCC, the nature of this method remains unknown in the related studies. The present study aimed to describe and interpret the experiences of professional and familial caregive...

متن کامل

The Caring-related Problems Experienced by Family Caregivers of Patients With Breast Cancer: A Descriptive Study

Introduction: The diagnosis of cancer involves the patients, their caregivers, and families. Caregivers should obtain guidance from health care professionals to promote care facilities. The current study aimed at investigating the economic, socio-individual, informational, and psycho-spiritual problems of caregivers in post-treatment phase of breast cancer. Methods: The present descriptive stu...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:

دوره 7  شماره 

صفحات  -

تاریخ انتشار 2017